Driving Global Change in Hidradenitis Suppurativa
HS Warrior Stories partners with organizations, advocates, brands, and healthcare leaders to expand awareness, strengthen patient communities, and improve the lived experience of people with hidradenitis suppurativa worldwide.
Below are many ways we collaborate with partners who share our commitment to improving understanding and support for people living with HS.
WHY PARTNER WITH US
Patient-led
Lived experience is at the center of everything we do. As both a patient and caregiver for over a decade, we bring authenticity, empathy, and real-world insight that ensures every story, resource, and collaboration reflects the true needs of the HS community.
Global reach
We are building a globally connected HS community, with patient stories, medical perspectives, and partnerships spanning multiple countries, cultures, and healthcare systems.
Our goal is to represent patient voices in every country. We have five countries and eight interviews complete.
TRUST
We have built strong, trusted relationships with patients, advocates, and healthcare professionals, creating a credible and respectful space for sharing stories and advancing meaningful dialogue across the HS community.
AUTHORITY
Our work bridges storytelling, education, and advocacy, positioning us as a credible voice in the HS space. Through global patient interviews, clinician conversations, and educational media, we translate lived experience into meaningful impact.
UNIQUE POSITION
We sit at the intersection of patient experience, media, and global advocacy, allowing us to connect communities, amplify voices, and drive collaboration in ways few others can.
WE ARE BUILDING A GLOBALLY CONNECTED HS COMMUNITY THROUGH STORYTELLING, EDUCATION AND STRATEGIC COLLABORATION.
HOW WE COLLABORATE
Documentary Storytelling
We document the real lived experiences of people with HS through cinematic, global storytelling that humanizes the condition, reduces stigma, and drives deeper understanding across patient and medical communities.
We also collaborate with the broader HS community, including clinicians, researchers, and advocacy organizations, to provide deeper insight into the condition.
Together, these stories connect lived experience with medical insight to better inform and empower the HS community.
Collab examples:
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Country-specific patient interview series
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Global storytelling initiatives
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Documentaries
Public Speaking & Appearances
Jillian and Jeremy speak on the realities of navigating hidradenitis suppurativa from both the patient and caregiver perspective.
Drawing from over a decade of lived experience, they are excellent speakers who combine personal storytelling with practical insight into the emotional, medical, and social challenges of chronic illness.
Collab examples:
• Patient advocacy conferences
• Medical and dermatology events
• Healthcare education programs
• Community advocacy panels
Brand Sponsorships & Integrations
We collaborate with mission-aligned brands whose products or services support the HS community.
These partnerships focus on authentic integration within content that highlights tools, products, and solutions that can make daily life with HS easier.
Collab examples:
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Product integrations
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Educational content collaborations
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Community-focused initiatives
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Affiliate partnerships
Advocacy Campaigns
Advocacy is the heartbeat of our mission.
We collaborate with organizations on awareness initiatives that amplify patient voices and help advance understanding of hidradenitis suppurativa.
Collab examples:
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Awareness campaigns
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Community storytelling initiatives
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Patient empowerment projects
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Educational advocacy initiatives
Educational Media
We transform lived experience into clear, actionable educational media that helps patients, caregivers, and healthcare professionals better understand and navigate HS.
We work with organizations and partners to develop educational media that helps patients, caregivers, and healthcare professionals better understand life with HS.
Collab examples:
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Patient experience insights
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Navigating diagnosis and treatment journeys
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Mental health and chronic illness
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Caregiver perspectives
Global Representation:
Coverage & Advocacy
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We represent and support partner organizations at HS-related events worldwide, capturing key insights, amplifying impact, and extending the reach of critical conversations across the global community.
We attend as trusted partners to document key insights, connect with stakeholders, and provide meaningful event coverage that extends the reach and impact of your organization’s mission.
Collab examples:
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Conferences & Summits
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Capitol Hill Day / policy advocacy
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Global field reporting