Photo by the talented: John Mollura
Why We Care
Hidradenitis Suppurativa (HS) nearly cost Jeremy his life.
Welcome, Friends and Fellow HS Warriors.
Jeremy’s journey with Hidradenitis Suppurativa began in 2015 — like so many, it started with a strange bump that wouldn’t go away. Years later, he lives with Hurley Stage III HS, managing varying levels of pain every single day. [Read the full story]
At its worst, HS left Jeremy bedridden for over nine months. He lost the ability to do the things that brought him joy. As a lifelong "fixer," Jillian was devastated to have no answers, and nothing helped.
It was one of the darkest times in our lives.
But that pain lit a fire. It pushed us to connect with the HS community and take action. Today, we are all in: as advocates, storytellers, and unstoppable partners in this fight.
And here’s a mantra we live by, one we hope you’ll carry too:
It’s our passions that define us — not HS.
HS doesn’t get to label us. Ever.
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HIDRADENITIS SUPPURATIVA (HS)
Warrior Stories
Warrior Stories are videos between 10-15 minutes long which showcase amazing individuals (we call WARRIORS) suffering from Hidradenitis Suppurativa (HS) around the world. We plan to incorporate HS-related stories from doctors, medical professionals, caretakers, and more.
As world travelers, Warrior Stories was a natural fit with our desire to advocate for HS, inspire others, and refuse to be defined or limited by Hidradenitis Suppurativa. Our HS Warriors rise above the challenges of Hidradenitis Suppurativa to live boldly and authentically, and they aren't afraid to show it.
Five stories have been shared to date, and over 80 requests from around the globe been received. We are excited at the idea of every person living with HS being able to identify with one of our Warriors.
Collaborations
Working with the best is our goal. We've been fortunate enough to forge solid working together relationships with medical professionals, pharmaceutical companies, HS advocacy groups, individual advocates, and nonprofits such as The Association of Hidradenitis Suppurativa and Infectious Diseases, where we are Ambassadors to help amplify their message and join them in advocacy projects.
As we begin to flesh-out this website with additional HS-related information, please use the above two links for a wealth of information about HS, including many resources.
