HS ADVOCACY
Welcome, Friends and Fellow HS Warriors.
Hidradenitis Suppurativa (HS) is a painful, chronic inflammatory skin disease that affects millions of people worldwide. An estimated 1-4% of the global population live with HS (80-330 million people); however, that number is expected to be inaccurate (low) due to lack of knowledge from both the patient and medical communities.
Together, we’ve experienced the devastating impacts this condition has on both patients and caregivers. That experience now drives our mission to advocate, educate, and amplify voices across the global HS community.
There is no cure for HS...yet.
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Photo by the talented: John Mollura
Why We Care
Hidradenitis Suppurativa (HS) nearly cost Jeremy his life.
Jeremy’s journey with Hidradenitis Suppurativa began in 2015. Like so many, it started with a strange bump that wouldn’t go away. Years later, he lives with Hurley Stage III HS, managing varying levels of pain every single day.
At its worst, HS left Jeremy bedridden for over nine months. He lost the ability to do the things that brought him joy. As a lifelong "fixer," Jillian was devastated to have no answers, and nothing helped.
It was one of the darkest times in our lives.
But that pain lit a fire. It pushed us to connect with the HS community and take action. Today, we are all in: as advocates, storytellers, and unstoppable partners in this fight.
And here’s a mantra we live by, one we hope you’ll carry too:
It’s our passions that define us — not HS.
HS doesn’t get to label us. Ever.
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HS Warrior Stories is a documentary storytelling project created by Jillian and Jeremy Hinskton to elevate the voices and lived experiences of people living with hidradenitis suppurativa (HS).
Inspired by Jeremy’s own journey with advanced-stage HS, the project features interviews with patients, caregivers, advocates, and clinicians around the world.
Through these conversations, HS Warrior Stories helps reduce isolation, expand understanding, and connect the global HS community.
Are you interested in being interviewed? Please complete "Step 1" below.
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Collaborations
Collaboration is at the heart of HS Warrior Stories.
We work alongside organizations, advocates, clinicians, brands, and community leaders who are committed to improving the lives of people living with hidradenitis suppurativa.
Through storytelling, education, advocacy, and media, we partner with stakeholders across the HS ecosystem to elevate real patient voices, expand awareness, and help drive meaningful change.
We are also proud to serve as Ambassadors for the Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID), where we support their mission by amplifying education, awareness, and advocacy initiatives within the global HS community.
To learn more about how we collaborate with partners, please explore our Collaboration Opportunities below.
We look forward to working together.
